\u1ede ch\u00e2u Phi, c\u1ee9 5.000 ng\u01b0\u1eddi th\u00ec c\u00f3 m\u1ed9t ng\u01b0\u1eddi sinh ra v\u1edbi b\u1ec7nh b\u1ea1ch t\u1ea1ng, m\u1ed9t \u0111\u1eb7c \u0111i\u1ec3m di truy\u1ec1n l\u00e0m gi\u1ea3m ho\u1eb7c ng\u0103n ch\u1eb7n s\u1ea3n xu\u1ea5t melanin. \u0110i\u1ec1u n\u00e0y d\u1eabn \u0111\u1ebfn l\u00e0n da, t\u00f3c v\u00e0 m\u1eaft r\u1ea5t s\u00e1ng, nh\u1ea1y c\u1ea3m c\u1ef1c \u0111\u1ed9 v\u1edbi \u00e1nh n\u1eafng m\u1eb7t tr\u1eddi v\u00e0 th\u1ecb l\u1ef1c th\u01b0\u1eddng y\u1ebfu. Tuy nhi\u00ean, \u0111i\u1ec1u \u0111\u00e1ng l\u1ebd ch\u1ec9 l\u00e0 m\u1ed9t s\u1ef1 kh\u00e1c bi\u1ec7t th\u1ec3 ch\u1ea5t \u0111\u01a1n thu\u1ea7n l\u1ea1i th\u01b0\u1eddng tr\u1edf th\u00e0nh ngu\u1ed3n g\u1ed1c c\u1ee7a n\u1ed7i \u0111au s\u00e2u s\u1eafc. T\u1eeb nhi\u1ec1u th\u1ebf k\u1ef7 nay, nh\u1eefng ni\u1ec1m tin v\u0103n h\u00f3a v\u00e0 huy\u1ec1n tho\u1ea1i xung quanh t\u00ecnh tr\u1ea1ng n\u00e0y \u0111\u00e3 bi\u1ebfn cu\u1ed9c s\u1ed1ng c\u1ee7a nh\u1eefng ng\u01b0\u1eddi m\u1eafc b\u1ec7nh th\u00e0nh m\u1ed9t h\u00e0nh tr\u00ecnh \u0111\u1ea7y ch\u00f4ng gai, khinh mi\u1ec7t v\u00e0 \u0111\u00f4i khi l\u00e0 nh\u1eefng nguy hi\u1ec3m ch\u1ebft ng\u01b0\u1eddi.<\/p>\n
Ngay t\u1eeb khi sinh ra, tr\u1ebb em m\u1eafc b\u1ec7nh b\u1ea1ch t\u1ea1ng \u0111\u00e3 n\u1ed5i b\u1eadt v\u1edbi ngo\u1ea1i h\u00ecnh b\u1ea5t th\u01b0\u1eddng \u1edf nhi\u1ec1u khu v\u1ef1c c\u1ee7a ch\u00e2u Phi. Kh\u00f4ng gi\u1ed1ng nh\u01b0 \u1edf ch\u00e2u \u00c2u, n\u01a1i ch\u1ea9n \u0111o\u00e1n th\u01b0\u1eddng \u0111\u1ebfn mu\u1ed9n h\u01a1n, s\u1ef1 kh\u00e1c bi\u1ec7t c\u1ee7a ch\u00fang \u0111\u01b0\u1ee3c nh\u1eadn th\u1ea5y ngay l\u1eadp t\u1ee9c v\u00e0 g\u00e2y ra nhi\u1ec1u ph\u1ea3n \u1ee9ng kh\u00e1c nhau. \u1ede m\u1ed9t s\u1ed1 qu\u1ed1c gia, s\u1ef1 ra \u0111\u1eddi c\u1ee7a ch\u00fang \u0111\u01b0\u1ee3c coi l\u00e0 m\u1ed9t l\u1eddi nguy\u1ec1n r\u1ee7a ho\u1eb7c m\u1ed9t h\u00ecnh ph\u1ea1t t\u1eeb th\u1ea7n th\u00e1nh. C\u00e1c c\u00e2u chuy\u1ec7n l\u1ecbch s\u1eed th\u1eadm ch\u00ed c\u00f2n ghi nh\u1eadn nh\u1eefng tr\u01b0\u1eddng h\u1ee3p gi\u1ebft tr\u1ebb s\u01a1 sinh ho\u1eb7c b\u1ecf r\u01a1i, m\u1eb7c d\u00f9 m\u1ed9t s\u1ed1 n\u1ec1n v\u0103n h\u00f3a, nh\u01b0 \u1edf Congo, coi ch\u00fang l\u00e0 nh\u1eefng sinh v\u1eadt thi\u00eang li\u00eang. Ng\u00e0y nay, nh\u1eefng \u0111\u1ecbnh ki\u1ebfn v\u1eabn c\u00f2n t\u1ed3n t\u1ea1i: m\u1ed9t s\u1ed1 ng\u01b0\u1eddi tin r\u1eb1ng h\u1ecd s\u1edf h\u1eefu nh\u1eefng s\u1ee9c m\u1ea1nh ma thu\u1eadt ho\u1eb7c h\u1ecd kh\u00f4ng ch\u1ebft m\u1ed9t c\u00e1ch t\u1ef1 nhi\u00ean. T\u1ec7 h\u01a1n n\u1eefa, nh\u1eefng l\u1eddi \u0111\u1ed3n \u0111\u1ea1i kh\u1eb3ng \u0111\u1ecbnh r\u1eb1ng c\u00e1c b\u1ed9 ph\u1eadn c\u01a1 th\u1ec3 c\u1ee7a h\u1ecd c\u00f3 th\u1ec3 mang l\u1ea1i may m\u1eafn ho\u1eb7c ch\u1eefa l\u00e0nh b\u1ec7nh t\u1eadt, th\u00fac \u0111\u1ea9y m\u1ed9t ho\u1ea1t \u0111\u1ed9ng bu\u00f4n b\u00e1n \u0111en t\u1ed1i v\u00e0 nh\u1eefng cu\u1ed9c t\u1ea5n c\u00f4ng c\u00f3 ch\u1ee7 \u0111\u00edch. Trong v\u00e0i n\u0103m g\u1ea7n \u0111\u00e2y, h\u01a1n b\u1ea3y tr\u0103m v\u1ee5 t\u1ea5n c\u00f4ng, trong \u0111\u00f3 c\u00f3 hai tr\u0103m v\u1ee5 gi\u1ebft ng\u01b0\u1eddi, \u0111\u00e3 \u0111\u01b0\u1ee3c ghi nh\u1eadn \u1edf ba m\u01b0\u01a1i m\u1ed1t qu\u1ed1c gia ch\u00e2u Phi. Ph\u1ea7n l\u1edbn n\u1ea1n nh\u00e2n l\u00e0 tr\u1ebb em.<\/p>\n
S\u1ef1 ru\u1ed3ng b\u1ecf kh\u00f4ng ch\u1ec9 gi\u1edbi h\u1ea1n \u1edf b\u1ea1o l\u1ef1c th\u1ec3 x\u00e1c. N\u00f3 th\u1ea5m s\u00e2u v\u00e0o cu\u1ed9c s\u1ed1ng h\u00e0ng ng\u00e0y, ngay t\u1eeb nh\u1eefng t\u01b0\u01a1ng t\u00e1c \u0111\u1ea7u ti\u00ean. Nh\u1eefng b\u00e0 m\u1eb9 \u0111\u00f4i khi b\u1ecb bu\u1ed9c t\u1ed9i ngo\u1ea1i t\u00ecnh ho\u1eb7c b\u1ecb gia \u0111\u00ecnh ru\u1ed3ng b\u1ecf. Tr\u1ebb em ph\u1ea3i ch\u1ecbu \u0111\u1ef1ng nh\u1eefng l\u1eddi ch\u1ebf gi\u1ec5u, b\u1ecb lo\u1ea1i tr\u1eeb v\u00e0 g\u1eb7p kh\u00f3 kh\u0103n trong h\u1ecdc t\u1eadp, v\u00ec th\u1ecb l\u1ef1c y\u1ebfu v\u00e0 nh\u1ea1y c\u1ea3m v\u1edbi \u00e1nh s\u00e1ng khi\u1ebfn ch\u00fang kh\u00f4ng th\u1ec3 theo k\u1ecbp c\u00e1c b\u00e0i h\u1ecdc m\u1ed9t c\u00e1ch b\u00ecnh th\u01b0\u1eddng. Nhi\u1ec1u tr\u1ebb ph\u1ea3i b\u1ecf h\u1ecdc s\u1edbm, m\u1ea5t \u0111i c\u01a1 h\u1ed9i c\u00f3 m\u1ed9t t\u01b0\u01a1ng lai ngh\u1ec1 nghi\u1ec7p \u1ed5n \u0111\u1ecbnh. Ng\u01b0\u1eddi l\u1edbn th\u00ec kh\u00f3 t\u00ecm \u0111\u01b0\u1ee3c vi\u1ec7c l\u00e0m, v\u00ec c\u00e1c nh\u00e0 tuy\u1ec3n d\u1ee5ng s\u1ee3 s\u1ef1 kh\u00e1c bi\u1ec7t c\u1ee7a h\u1ecd ho\u1eb7c cho r\u1eb1ng h\u1ecd mang l\u1ea1i \u0111i\u1ec1u xui x\u1ebbo. Ph\u1ee5 n\u1eef v\u00e0 tr\u1ebb em g\u00e1i \u0111\u1eb7c bi\u1ec7t d\u1ec5 b\u1ecb t\u1ed5n th\u01b0\u01a1ng: m\u1ed9t s\u1ed1 tr\u1edf th\u00e0nh n\u1ea1n nh\u00e2n c\u1ee7a b\u1ea1o l\u1ef1c t\u00ecnh d\u1ee5c, v\u1edbi l\u00fd do r\u1eb1ng quan h\u1ec7 v\u1edbi h\u1ecd c\u00f3 th\u1ec3 ch\u1eefa kh\u1ecfi c\u00e1c b\u1ec7nh nh\u01b0 AIDS.<\/p>\n
H\u1eadu qu\u1ea3 t\u00e2m l\u00fd l\u00e0 r\u1ea5t n\u1eb7ng n\u1ec1. \u00c1nh m\u1eaft c\u1ee7a ng\u01b0\u1eddi kh\u00e1c, nh\u1eefng \u0111\u1ecbnh ki\u1ebfn v\u00e0 s\u1ef1 c\u00f4 l\u1eadp l\u00e0m x\u00f3i m\u00f2n l\u00f2ng t\u1ef1 tin v\u00e0 t\u1ea1o ra c\u1ea3m gi\u00e1c x\u1ea5u h\u1ed5 l\u00e2u d\u00e0i. Ngay c\u1ea3 trong gia \u0111\u00ecnh, s\u1ef1 ch\u1ea5p nh\u1eadn c\u0169ng kh\u00f4ng ph\u1ea3i l\u00fac n\u00e0o c\u0169ng \u0111\u1ebfn ngay l\u1eadp t\u1ee9c. Cha m\u1eb9 c\u00f3 th\u1ec3 m\u1ea5t th\u1eddi gian \u0111\u1ec3 t\u1ea1o d\u1ef1ng m\u1ed1i li\u00ean k\u1ebft v\u1edbi con c\u00e1i, b\u1ecb x\u00e1o tr\u1ed9n b\u1edfi m\u1ed9t ngo\u1ea1i h\u00ecnh qu\u00e1 kh\u00e1c bi\u1ec7t so v\u1edbi h\u1ecd. Theo th\u1eddi gian, m\u1ed9t s\u1ed1 ng\u01b0\u1eddi h\u1ecdc c\u00e1ch v\u01b0\u1ee3t qua nh\u1eefng th\u1eed th\u00e1ch n\u00e0y, nh\u01b0ng g\u00e1nh n\u1eb7ng c\u1ee7a s\u1ef1 k\u1ef3 th\u1ecb v\u1eabn t\u1ed3n t\u1ea1i su\u1ed1t cu\u1ed9c \u0111\u1eddi.<\/p>\n
C\u00e1c h\u1ec7 th\u1ed1ng y t\u1ebf v\u00e0 gi\u00e1o d\u1ee5c, th\u01b0\u1eddng kh\u00f4ng \u0111\u01b0\u1ee3c chu\u1ea9n b\u1ecb t\u1ed1t, l\u00e0m tr\u1ea7m tr\u1ecdng th\u00eam t\u00ecnh h\u00ecnh. C\u00e1c d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c ph\u00f9 h\u1ee3p c\u1ef1c k\u1ef3 thi\u1ebfu th\u1ed1n: kem ch\u1ed1ng n\u1eafng, k\u00ednh s\u1eeda t\u1ecba ho\u1eb7c theo d\u00f5i nh\u00e3n khoa r\u1ea5t hi\u1ebfm. C\u00e1c chuy\u00ean gia y t\u1ebf, ch\u1ecbu \u1ea3nh h\u01b0\u1edfng b\u1edfi nh\u1eefng \u0111\u1ecbnh ki\u1ebfn t\u01b0\u01a1ng t\u1ef1, \u0111\u00f4i khi cung c\u1ea5p s\u1ef1 ti\u1ebfp \u0111\u00f3n l\u1ea1nh l\u00f9ng ho\u1eb7c kh\u00f4ng ph\u00f9 h\u1ee3p. \u1ede tr\u01b0\u1eddng h\u1ecdc, vi\u1ec7c thi\u1ebfu c\u00e1c \u0111i\u1ec1u ki\u1ec7n h\u1ed7 tr\u1ee3 cho h\u1ecdc sinh khi\u1ebfm th\u1ecb v\u00e0 th\u00e1i \u0111\u1ed9 th\u00f9 \u0111\u1ecbch c\u1ee7a b\u1ea1n b\u00e8 l\u00e0m cho vi\u1ec7c h\u1ecdc t\u1eadp tr\u1edf n\u00ean kh\u00f3 kh\u0103n h\u01a1n.<\/p>\n
Tr\u01b0\u1edbc th\u1ef1c t\u1ebf n\u00e0y, c\u00e1c h\u00e0nh \u0111\u1ed9ng \u0111\u00e3 \u0111\u01b0\u1ee3c tri\u1ec3n khai. C\u00e1c chi\u1ebfn d\u1ecbch n\u00e2ng cao nh\u1eadn th\u1ee9c c\u1ed1 g\u1eafng l\u00e0m s\u00e1ng t\u1ecf v\u1ec1 b\u1ec7nh b\u1ea1ch t\u1ea1ng v\u00e0 gi\u00e1o d\u1ee5c c\u1ed9ng \u0111\u1ed3ng. C\u00e1c t\u1ed5 ch\u1ee9c phi ch\u00ednh ph\u1ee7 v\u00e0 c\u00e1c ch\u00ednh ph\u1ee7, nh\u01b0 \u1edf Tanzania ho\u1eb7c Malawi, t\u0103ng c\u01b0\u1eddng c\u00e1c lu\u1eadt ch\u1ed1ng b\u1ea1o l\u1ef1c v\u00e0 \u0111\u00e0o t\u1ea1o gi\u00e1o vi\u00ean \u0111\u1ec3 h\u1ed7 tr\u1ee3 t\u1ed1t h\u01a1n cho tr\u1ebb em m\u1eafc b\u1ec7nh. T\u1eeb n\u0103m 2014, m\u1ed9t ng\u00e0y qu\u1ed1c t\u1ebf \u0111\u01b0\u1ee3c d\u00e0nh ri\u00eang cho b\u1ec7nh b\u1ea1ch t\u1ea1ng \u0111\u1ec3 c\u1ea3nh b\u00e1o v\u1ec1 nh\u1eefng ph\u00e2n bi\u1ec7t \u0111\u1ed1i x\u1eed n\u00e0y. C\u00e1c nh\u00e2n v\u1eadt c\u00f4ng ch\u00fang m\u1eafc b\u1ec7nh b\u1ea1ch t\u1ea1ng d\u1ea7n ph\u00e1 v\u1ee1 nh\u1eefng \u0111i\u1ec1u c\u1ea5m k\u1ef5 b\u1eb1ng c\u00e1ch chia s\u1ebb c\u00e2u chuy\u1ec7n c\u1ee7a h\u1ecd v\u00e0 kh\u1eb3ng \u0111\u1ecbnh v\u1ecb tr\u00ed c\u1ee7a m\u00ecnh trong x\u00e3 h\u1ed9i.<\/p>\n
Tuy nhi\u00ean, nh\u1eefng th\u00e1ch th\u1ee9c v\u1eabn c\u00f2n r\u1ea5t l\u1edbn. Nh\u1eefng ni\u1ec1m tin \u0103n s\u00e2u v\u00e0o truy\u1ec1n th\u1ed1ng \u0111\u1ecba ph\u01b0\u01a1ng kh\u00e1ng c\u1ef1 l\u1ea1i s\u1ef1 thay \u0111\u1ed5i. C\u00e1c ch\u01b0\u01a1ng tr\u00ecnh y t\u1ebf v\u00e0 gi\u00e1o d\u1ee5c kh\u00f3 c\u00f3 th\u1ec3 \u0111\u00e1p \u1ee9ng t\u1ea5t c\u1ea3 c\u00e1c nhu c\u1ea7u, \u0111\u1eb7c bi\u1ec7t l\u00e0 \u1edf c\u00e1c v\u00f9ng n\u00f4ng th\u00f4n. C\u00e1c gia \u0111\u00ecnh c\u1ea7n s\u1ef1 h\u1ed7 tr\u1ee3 v\u1ec1 t\u00e2m l\u00fd v\u00e0 y t\u1ebf \u0111\u1ec3 hi\u1ec3u v\u00e0 s\u1ed1ng chung v\u1edbi \u0111\u1eb7c \u0111i\u1ec3m di truy\u1ec1n n\u00e0y t\u1ed1t h\u01a1n. C\u00e1c t\u01b0 v\u1ea5n di truy\u1ec1n c\u0169ng c\u00f3 th\u1ec3 gi\u00fap h\u1ecd truy\u1ec1n \u0111\u1ea1t th\u00f4ng tin ch\u00ednh x\u00e1c cho nh\u1eefng ng\u01b0\u1eddi xung quanh v\u00e0 ch\u1ed1ng l\u1ea1i nh\u1eefng quan ni\u1ec7m sai l\u1ea7m.<\/p>\n
Thay \u0111\u1ed5i t\u01b0 duy \u0111\u00f2i h\u1ecfi th\u1eddi gian, nh\u01b0ng m\u1ed7i b\u01b0\u1edbc \u0111i \u0111\u1ec1u c\u00f3 \u00fd ngh\u0129a. N\u00e2ng cao nh\u1eadn th\u1ee9c c\u1ed9ng \u0111\u1ed3ng, \u0111\u00e0o t\u1ea1o c\u00e1c chuy\u00ean gia v\u00e0 b\u1ea3o v\u1ec7 quy\u1ec1n c\u1ee7a nh\u1eefng ng\u01b0\u1eddi m\u1eafc b\u1ec7nh b\u1ea1ch t\u1ea1ng l\u00e0 nh\u1eefng b\u01b0\u1edbc \u0111i thi\u1ebft y\u1ebfu. S\u1ef1 h\u00f2a nh\u1eadp \u0111\u1ea7y \u0111\u1ee7 c\u1ee7a h\u1ecd s\u1ebd ph\u1ee5 thu\u1ed9c v\u00e0o kh\u1ea3 n\u0103ng thay th\u1ebf n\u1ed7i s\u1ee3 h\u00e3i v\u1ec1 s\u1ef1 kh\u00e1c bi\u1ec7t b\u1eb1ng s\u1ef1 ch\u1ea5p nh\u1eadn th\u1ef1c s\u1ef1.<\/p>\n
DOI\u00a0:<\/strong> https:\/\/doi.org\/10.1007\/s12687-026-00872-0<\/a><\/p>\n Titre\u00a0:<\/strong> The impact of stigma on people with albinism in Africa: a narrative review<\/p>\n Revue : <\/strong> Journal of Community Genetics<\/p>\n \u00c9diteur : <\/strong> Springer Science and Business Media LLC<\/p>\n Auteurs : <\/strong> Jennifer GR Kromberg; Robyn A Kerr<\/p>\n","protected":false},"excerpt":{"rendered":" T\u1ea1i sao nh\u1eefng ng\u01b0\u1eddi m\u1eafc b\u1ec7nh b\u1ea1ch t\u1ea1ng \u1edf ch\u00e2u Phi v\u1eabn ph\u1ea3i ch\u1ecbu s\u1ef1 ru\u1ed3ng b\u1ecf v\u00e0 b\u1ea1o l\u1ef1c cho \u0111\u1ebfn ng\u00e0y nay \u1ede ch\u00e2u Phi, c\u1ee9 5.000 ng\u01b0\u1eddi th\u00ec c\u00f3 m\u1ed9t ng\u01b0\u1eddi sinh ra v\u1edbi b\u1ec7nh b\u1ea1ch t\u1ea1ng, m\u1ed9t \u0111\u1eb7c \u0111i\u1ec3m di truy\u1ec1n l\u00e0m gi\u1ea3m ho\u1eb7c ng\u0103n ch\u1eb7n s\u1ea3n xu\u1ea5t melanin. \u0110i\u1ec1u n\u00e0y… Continue reading T\u1ea1i sao nh\u1eefng ng\u01b0\u1eddi m\u1eafc b\u1ec7nh b\u1ea1ch t\u1ea1ng \u1edf ch\u00e2u Phi v\u1eabn ph\u1ea3i ch\u1ecbu s\u1ef1 ru\u1ed3ng b\u1ecf v\u00e0 b\u1ea1o l\u1ef1c cho \u0111\u1ebfn ng\u00e0y nay<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6,5,4],"tags":[],"class_list":["post-21","post","type-post","status-publish","format-standard","hentry","category-quoc-te","category-suc-khoe","category-xa-hoi","entry"],"_links":{"self":[{"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/posts\/21","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/comments?post=21"}],"version-history":[{"count":1,"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/posts\/21\/revisions"}],"predecessor-version":[{"id":22,"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/posts\/21\/revisions\/22"}],"wp:attachment":[{"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/media?parent=21"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/categories?post=21"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sociologyanalysisinstitute.com\/vi\/wp-json\/wp\/v2\/tags?post=21"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}